1 00:00:00,660 --> 00:00:03,150 Hello, welcome to module eight. 2 00:00:03,150 --> 00:00:04,680 Welcome back from spring break 3 00:00:04,680 --> 00:00:07,950 and congratulations on finishing up your midterms. 4 00:00:07,950 --> 00:00:09,450 Now that I have all of them turned in, 5 00:00:09,450 --> 00:00:11,250 I'll go ahead and grade those 6 00:00:11,250 --> 00:00:13,440 and get those back to you as soon as I can. 7 00:00:13,440 --> 00:00:14,460 And this week, 8 00:00:14,460 --> 00:00:17,700 now that we're sort of transitioning a little bit deeper 9 00:00:17,700 --> 00:00:22,700 into genetics and genomics in the clinical context, 10 00:00:23,040 --> 00:00:23,970 we're going to talk about some 11 00:00:23,970 --> 00:00:26,670 of the ethical, legal and social implications, 12 00:00:26,670 --> 00:00:30,240 which is denoted as ELSI for short. 13 00:00:30,240 --> 00:00:33,060 And some of that are specifically applicable 14 00:00:33,060 --> 00:00:36,660 in the genetics and genomics context. 15 00:00:36,660 --> 00:00:38,460 So there are two lectures. 16 00:00:38,460 --> 00:00:41,880 There's really one main lecture, which is posted, 17 00:00:41,880 --> 00:00:43,770 which kind of goes over some of the basics 18 00:00:43,770 --> 00:00:47,550 of some specific issues associated 19 00:00:47,550 --> 00:00:51,330 with genetic and genomic testing and their implications, 20 00:00:51,330 --> 00:00:54,120 as well as some of the laws that are in place 21 00:00:54,120 --> 00:00:58,230 to protect us from discrimination, genetic discrimination. 22 00:00:58,230 --> 00:01:02,340 And then there's the second lecture is a shorter one 23 00:01:02,340 --> 00:01:05,310 and that is actually just some case studies 24 00:01:05,310 --> 00:01:08,100 to talk about what is and is not protected 25 00:01:08,100 --> 00:01:12,540 by the Genetic Information Nondiscrimination Act, 26 00:01:12,540 --> 00:01:13,830 or GINA for short. 27 00:01:13,830 --> 00:01:16,200 We have ELSI and GINA this week. 28 00:01:16,200 --> 00:01:18,510 So that's the second one. 29 00:01:18,510 --> 00:01:22,260 That one, as I said, is a bit shorter for a lecture. 30 00:01:22,260 --> 00:01:25,410 And then you have some reading in the required reading, 31 00:01:25,410 --> 00:01:27,840 a couple of sections from the textbook. 32 00:01:27,840 --> 00:01:31,890 And then I have the position statements 33 00:01:31,890 --> 00:01:34,530 from the International Society of Nurses in Genetics 34 00:01:34,530 --> 00:01:36,660 on a number of different topics. 35 00:01:36,660 --> 00:01:40,620 And sort of where they fall along those lines? 36 00:01:40,620 --> 00:01:43,560 And I'm asking you for your assignment this week 37 00:01:43,560 --> 00:01:46,620 to read those position statements 38 00:01:46,620 --> 00:01:48,720 and then to reflect on those for yourself 39 00:01:48,720 --> 00:01:49,740 and in your own practice, 40 00:01:49,740 --> 00:01:51,750 or what you anticipate will be your practice 41 00:01:51,750 --> 00:01:54,570 if you're not currently having a practice. 42 00:01:54,570 --> 00:01:59,250 And write a reflection paper on a particular topic 43 00:01:59,250 --> 00:02:01,230 that seems either it's something 44 00:02:01,230 --> 00:02:03,600 that you see a lot in what you do today, 45 00:02:03,600 --> 00:02:07,230 or something that maybe, for one reason or another, 46 00:02:07,230 --> 00:02:09,060 seems of great interest to you 47 00:02:09,060 --> 00:02:11,910 that I would encourage you to go ahead 48 00:02:11,910 --> 00:02:14,760 and do a little bit of research on that. 49 00:02:14,760 --> 00:02:17,040 So you have the position statement. 50 00:02:17,040 --> 00:02:19,620 You may want to just check a few other sources 51 00:02:19,620 --> 00:02:22,200 and make sure you have the most up-to-date information 52 00:02:22,200 --> 00:02:23,040 on things 53 00:02:23,040 --> 00:02:25,500 and then reflect on it and write a reflection paper. 54 00:02:25,500 --> 00:02:29,490 Reflection paper is something written in the first person, 55 00:02:29,490 --> 00:02:32,250 more of a narrative type of writing assignment. 56 00:02:32,250 --> 00:02:35,880 And just asking you to again, reflect on it. 57 00:02:35,880 --> 00:02:39,690 Write then how you feel, what your position is on this? 58 00:02:39,690 --> 00:02:40,950 When we're talking about ethics, 59 00:02:40,950 --> 00:02:42,903 as I'm sure you're aware, 60 00:02:44,143 --> 00:02:47,490 there's never really just one right answer, right? 61 00:02:47,490 --> 00:02:49,080 There are many sides to consider, 62 00:02:49,080 --> 00:02:50,550 many positions to consider. 63 00:02:50,550 --> 00:02:52,710 So I encourage you to think about it 64 00:02:52,710 --> 00:02:57,390 and really reflect and write down your thoughts on that. 65 00:02:57,390 --> 00:02:58,920 So that's the assignment for this week. 66 00:02:58,920 --> 00:03:00,720 There's no quiz this week. 67 00:03:00,720 --> 00:03:03,630 Because again this kind of material's really best 68 00:03:03,630 --> 00:03:04,830 to reflect on, 69 00:03:04,830 --> 00:03:06,540 think about for yourself 70 00:03:06,540 --> 00:03:11,540 and not so much a multiple-choice type of question, 71 00:03:12,360 --> 00:03:14,697 would be appropriate for this. 72 00:03:14,697 --> 00:03:16,350 So really think about it for yourself, 73 00:03:16,350 --> 00:03:17,970 for your own practice 74 00:03:17,970 --> 00:03:20,280 and that will come through in your reflection. 75 00:03:20,280 --> 00:03:22,080 And then also the discussion board. 76 00:03:22,080 --> 00:03:22,913 The discussion board, 77 00:03:22,913 --> 00:03:25,590 I will encourage you to post something 78 00:03:25,590 --> 00:03:27,483 that either you've seen, 79 00:03:29,365 --> 00:03:30,870 or experienced something that you'd like 80 00:03:30,870 --> 00:03:32,100 to share with others, 81 00:03:32,100 --> 00:03:33,180 or get their perspective on. 82 00:03:33,180 --> 00:03:35,220 Maybe it's something, you post something this week 83 00:03:35,220 --> 00:03:36,900 on the discussion board related 84 00:03:36,900 --> 00:03:38,970 to what you're writing your reflection paper on. 85 00:03:38,970 --> 00:03:41,850 Or in doing some research for your reflection paper, 86 00:03:41,850 --> 00:03:43,230 you come across something 87 00:03:43,230 --> 00:03:45,390 that you'd like to get other people's feedback on, 88 00:03:45,390 --> 00:03:46,710 or you just wanna comment on. 89 00:03:46,710 --> 00:03:48,030 So I encourage you 90 00:03:48,030 --> 00:03:49,920 to use the discussion board early and often, 91 00:03:49,920 --> 00:03:50,850 especially in a week 92 00:03:50,850 --> 00:03:54,240 when we're talking about ethics and social implications. 93 00:03:54,240 --> 00:03:55,200 I think that's really important 94 00:03:55,200 --> 00:03:59,610 to get everyone's perspective and thoughts on it. 95 00:03:59,610 --> 00:04:04,610 So we can have an expanded base of experience for ourselves, 96 00:04:05,160 --> 00:04:06,750 moving forward with it. 97 00:04:06,750 --> 00:04:09,810 So that is pretty much it. 98 00:04:09,810 --> 00:04:11,970 There's another folder in the required reading 99 00:04:11,970 --> 00:04:13,110 that is optional 100 00:04:13,110 --> 00:04:14,970 and that contains a couple of papers 101 00:04:14,970 --> 00:04:17,190 that I pulled that might be useful 102 00:04:17,190 --> 00:04:19,530 if you want to look up some more information 103 00:04:19,530 --> 00:04:21,270 on some of those different topics 104 00:04:21,270 --> 00:04:24,660 that are covered in the position statements 105 00:04:24,660 --> 00:04:26,340 that are included in there. 106 00:04:26,340 --> 00:04:28,890 So look at that, you can pull some other, 107 00:04:28,890 --> 00:04:30,596 of course, pull any resources 108 00:04:30,596 --> 00:04:34,110 that you'd like to use to help you research it. 109 00:04:34,110 --> 00:04:35,883 But that's basically, 110 00:04:37,170 --> 00:04:39,420 those additional papers are there for you to use 111 00:04:39,420 --> 00:04:41,920 if you're interested in reading a little bit more. 112 00:04:42,810 --> 00:04:46,530 So, yeah, I think then with that, 113 00:04:46,530 --> 00:04:49,200 we're pretty much all set for this week. 114 00:04:49,200 --> 00:04:50,700 And I really look forward 115 00:04:50,700 --> 00:04:54,450 to hearing your thoughts and perspectives, your experience, 116 00:04:54,450 --> 00:04:56,580 even just your gut reactions on things 117 00:04:56,580 --> 00:04:58,500 and kind of talking 118 00:04:58,500 --> 00:05:00,930 through some of these situations together. 119 00:05:00,930 --> 00:05:03,000 And then that's gonna set us up 120 00:05:03,000 --> 00:05:07,050 for the rest of basically the second half of the course, 121 00:05:07,050 --> 00:05:11,010 we're gonna be diving into some more specific areas. 122 00:05:11,010 --> 00:05:14,970 And how genetics and genomics are starting to play a role 123 00:05:14,970 --> 00:05:18,591 in different practices and settings? 124 00:05:18,591 --> 00:05:23,130 As well as looking at genetic testing across the lifespan 125 00:05:23,130 --> 00:05:26,850 and how it's starting to play a greater role in medicine? 126 00:05:26,850 --> 00:05:29,280 With that, I will say goodbye. 127 00:05:29,280 --> 00:05:31,350 And yeah, let me know 128 00:05:31,350 --> 00:05:33,600 if you have any questions along the way 129 00:05:33,600 --> 00:05:36,930 and I look forward to reading all the discussions 130 00:05:36,930 --> 00:05:38,100 on the discussion board. 131 00:05:38,100 --> 00:05:39,363 Thanks so much, bye.