1 00:00:00,960 --> 00:00:02,970 Hey, everybody. Welcome back. 2 00:00:02,970 --> 00:00:06,420 States are often dealing with the terribly complex issues 3 00:00:06,420 --> 00:00:10,710 of substituted decision-making, advance decision-making, 4 00:00:10,710 --> 00:00:13,500 or the absent decision-maker. 5 00:00:13,500 --> 00:00:15,870 If you look at various state legislatures right now, 6 00:00:15,870 --> 00:00:18,360 I have no doubt you'll see a couple of bills being discussed 7 00:00:18,360 --> 00:00:20,793 that impact these issues in one way or another. 8 00:00:21,750 --> 00:00:26,070 The reason that these are often state-based issues 9 00:00:26,070 --> 00:00:29,700 is because this usually falls 10 00:00:29,700 --> 00:00:33,150 onto the police power of a state 11 00:00:33,150 --> 00:00:36,060 to deal with the health and safety of residents. 12 00:00:36,060 --> 00:00:38,910 In week 11, in Module 11, we saw some examples of 13 00:00:38,910 --> 00:00:41,580 how these issues arise and how they're dealt with. 14 00:00:41,580 --> 00:00:46,020 This week, I want to think more in depth about this 15 00:00:46,020 --> 00:00:50,070 and get you more comfortable with the technical differences 16 00:00:50,070 --> 00:00:51,840 as well as the processes involved 17 00:00:51,840 --> 00:00:55,470 in creating these documents, how they're used, 18 00:00:55,470 --> 00:00:56,610 what can go wrong. 19 00:00:56,610 --> 00:00:59,340 More importantly, I wanna spend a little time and energy 20 00:00:59,340 --> 00:01:02,730 looking at the resulting problems that arise 21 00:01:02,730 --> 00:01:04,443 because of these documents. 22 00:01:06,270 --> 00:01:07,830 So first, let's talk about the broad idea 23 00:01:07,830 --> 00:01:09,603 of substituted decision-making. 24 00:01:10,560 --> 00:01:12,510 This is generally a legal concept 25 00:01:12,510 --> 00:01:14,973 that refers to the process in which one person, 26 00:01:15,810 --> 00:01:19,560 referred to as the substitute decision-maker or surrogate, 27 00:01:19,560 --> 00:01:21,840 makes decisions on behalf of another person 28 00:01:21,840 --> 00:01:24,960 who's unable to make decisions for themselves 29 00:01:24,960 --> 00:01:29,250 due to an incapacity or a disability. 30 00:01:29,250 --> 00:01:31,680 We talked about a little of this before. 31 00:01:31,680 --> 00:01:35,820 The concept is often applied in the context of healthcare, 32 00:01:35,820 --> 00:01:39,450 finances, and sometimes personal matters. 33 00:01:39,450 --> 00:01:43,500 The substitute decision-maker is appointed by a court 34 00:01:43,500 --> 00:01:46,020 or authorized through a legal process, 35 00:01:46,020 --> 00:01:49,440 a process that is recognized to be legal, 36 00:01:49,440 --> 00:01:51,180 to make decisions in the best interest 37 00:01:51,180 --> 00:01:53,880 of the person who lacks capacity. 38 00:01:53,880 --> 00:01:58,350 The role of this substitute decision-maker can vary. 39 00:01:58,350 --> 00:01:59,640 It depends on the jurisdiction 40 00:01:59,640 --> 00:02:01,830 and the specific circumstances 41 00:02:01,830 --> 00:02:05,190 and the specific instrument being used, 42 00:02:05,190 --> 00:02:06,810 but it generally involves decisions about 43 00:02:06,810 --> 00:02:10,500 the person's medical treatment, their living arrangements, 44 00:02:10,500 --> 00:02:15,500 their finances and other important aspects of their life. 45 00:02:15,660 --> 00:02:17,490 The substitute decision-maker is expected 46 00:02:17,490 --> 00:02:21,660 to act in best interest of the person they represent, 47 00:02:21,660 --> 00:02:24,780 taking into consideration the person's known wishes, 48 00:02:24,780 --> 00:02:26,730 their values, their beliefs, 49 00:02:26,730 --> 00:02:30,873 and make decisions that promote their wellbeing and welfare. 50 00:02:31,830 --> 00:02:33,970 One type of substitute decision-making 51 00:02:34,860 --> 00:02:36,690 is called the guardianship, 52 00:02:36,690 --> 00:02:39,630 and so this is a legal arrangement in which a person, 53 00:02:39,630 --> 00:02:42,513 often called the guardian, is appointed by a court. 54 00:02:43,530 --> 00:02:45,540 They make decisions on behalf of another person 55 00:02:45,540 --> 00:02:47,850 who is unable to make decisions for themselves 56 00:02:47,850 --> 00:02:50,193 due to their incapacity or disability. 57 00:02:51,090 --> 00:02:53,430 The person for whom the guardian is appointed 58 00:02:53,430 --> 00:02:56,020 is usually called the ward 59 00:02:57,060 --> 00:02:59,400 or incapacitated person. 60 00:02:59,400 --> 00:03:04,400 Guardianship is often used when an individual lacks capacity 61 00:03:04,590 --> 00:03:08,070 to make decisions about their, you know, medical affairs, 62 00:03:08,070 --> 00:03:10,113 their finances or their personal life. 63 00:03:12,420 --> 00:03:14,850 The guardian is granted legal authority by a court, 64 00:03:14,850 --> 00:03:18,450 sometimes a probate court, sometimes a district court, 65 00:03:18,450 --> 00:03:22,140 to act in the best interest of the ward. 66 00:03:22,140 --> 00:03:24,000 They may have the power to make decisions 67 00:03:24,000 --> 00:03:27,330 about the ward's healthcare, living arrangements, 68 00:03:27,330 --> 00:03:31,320 finances, other important aspects of their life. 69 00:03:31,320 --> 00:03:32,520 Because it's a court order, 70 00:03:32,520 --> 00:03:37,520 it is often done per that individual's needs. 71 00:03:37,560 --> 00:03:40,530 So just because you've seen one of these 72 00:03:40,530 --> 00:03:42,930 does not mean it'll be the same as the next one. 73 00:03:44,160 --> 00:03:46,440 Another way to be a substitute decision-maker 74 00:03:46,440 --> 00:03:48,690 is through a power of attorney. 75 00:03:48,690 --> 00:03:50,520 Power of attorney is a legal document 76 00:03:50,520 --> 00:03:54,030 that grants authority from one person to another, 77 00:03:54,030 --> 00:03:58,020 and that person is often called the principal 78 00:03:58,020 --> 00:04:02,520 and then the agent to act on the principal's behalf 79 00:04:02,520 --> 00:04:05,883 in those legal, financial or other matters. 80 00:04:07,170 --> 00:04:08,970 This is not a court process. 81 00:04:08,970 --> 00:04:11,910 This is a recognized legal process 82 00:04:11,910 --> 00:04:14,370 that parties can engage in. 83 00:04:14,370 --> 00:04:19,110 Principal may give the agent broad or limited powers, 84 00:04:19,110 --> 00:04:22,230 depending on the scope of the authority specified 85 00:04:22,230 --> 00:04:24,270 in that power of attorney document. 86 00:04:24,270 --> 00:04:27,570 A power of attorney can be used in various situations, 87 00:04:27,570 --> 00:04:31,380 managing affairs, making healthcare decisions, 88 00:04:31,380 --> 00:04:33,450 real estate transactions, 89 00:04:33,450 --> 00:04:35,793 or just managing business interests. 90 00:04:36,630 --> 00:04:40,560 It's a fairly flexible legal tool that allows the principal 91 00:04:40,560 --> 00:04:44,310 to delegate their decision-making authority to their agent, 92 00:04:44,310 --> 00:04:47,580 and the agent is obligated to act in a manner, again, 93 00:04:47,580 --> 00:04:49,680 in the best interest of the principal 94 00:04:49,680 --> 00:04:51,693 within the authority granted. 95 00:04:52,800 --> 00:04:57,180 Power of attorneys are often in statute state by state. 96 00:04:57,180 --> 00:05:00,900 So just because you have a power of attorney document 97 00:05:00,900 --> 00:05:02,850 that's valid in one state does not mean it's valid 98 00:05:02,850 --> 00:05:04,500 in another state. 99 00:05:04,500 --> 00:05:07,680 It can get very complicated going across state lines 100 00:05:07,680 --> 00:05:08,930 with a power of attorney. 101 00:05:09,960 --> 00:05:11,650 A healthcare power of attorney 102 00:05:12,510 --> 00:05:15,150 is a specific type of power of attorney 103 00:05:15,150 --> 00:05:19,260 that allows the principal to designate someone they trust 104 00:05:19,260 --> 00:05:21,480 to make those healthcare decisions for them 105 00:05:21,480 --> 00:05:24,090 when they're unable to do so. 106 00:05:24,090 --> 00:05:27,390 This document is used to ensure the healthcare wishes 107 00:05:27,390 --> 00:05:29,280 of the principal are respected 108 00:05:29,280 --> 00:05:31,740 and that they receive the appropriate medical care, 109 00:05:31,740 --> 00:05:34,110 even if they can no longer communicate 110 00:05:34,110 --> 00:05:35,853 or make decisions for themselves. 111 00:05:37,050 --> 00:05:39,810 The authority of a healthcare agent may encompass 112 00:05:39,810 --> 00:05:43,590 a whole range of healthcare decisions, 113 00:05:43,590 --> 00:05:48,540 like treatments, surgeries, medications, end-of-life care, 114 00:05:48,540 --> 00:05:52,290 or other medical interventions that might be necessary. 115 00:05:52,290 --> 00:05:55,230 So it is more limited than a general power of attorney 116 00:05:55,230 --> 00:05:59,520 and more specific in that it is about healthcare. 117 00:05:59,520 --> 00:06:01,170 So the scope of authority granted 118 00:06:01,170 --> 00:06:04,020 can be pretty specifically defined 119 00:06:04,020 --> 00:06:06,690 in the healthcare power of attorney document, 120 00:06:06,690 --> 00:06:10,500 and again, the agent is obligated to make decisions 121 00:06:10,500 --> 00:06:14,640 with the known wishes and values in mind of the principal. 122 00:06:14,640 --> 00:06:16,953 They have to act in their best interest. 123 00:06:18,180 --> 00:06:21,450 Not all advance planning documents 124 00:06:21,450 --> 00:06:23,490 involve substituted decisions. 125 00:06:23,490 --> 00:06:26,730 Sometimes one can make an advance decision, 126 00:06:26,730 --> 00:06:30,033 and this is where sometimes folks get confused. 127 00:06:31,620 --> 00:06:34,120 It's important to consider the advanced directive, 128 00:06:34,980 --> 00:06:37,290 also known as the advance healthcare directive. 129 00:06:37,290 --> 00:06:40,770 This is a legal document that varies, again, 130 00:06:40,770 --> 00:06:44,040 by state or region that allows an individual 131 00:06:44,040 --> 00:06:47,880 to express their preferences and specify the type of care 132 00:06:47,880 --> 00:06:50,340 they wish to receive or not receive 133 00:06:50,340 --> 00:06:53,310 in the event they're unable to make their own decisions 134 00:06:53,310 --> 00:06:55,500 due to incapacity or disability. 135 00:06:55,500 --> 00:06:58,290 An advance directive is used to provide guidance 136 00:06:58,290 --> 00:07:00,570 to the healthcare providers and family members 137 00:07:00,570 --> 00:07:04,650 about the medical care and treatment they want to receive 138 00:07:04,650 --> 00:07:07,020 in specific situations. 139 00:07:07,020 --> 00:07:10,080 This is not a substitute decision-making document 140 00:07:10,080 --> 00:07:13,590 because the decision-maker does not change. 141 00:07:13,590 --> 00:07:17,670 They are just saying, "This is what I want to happen 142 00:07:17,670 --> 00:07:19,377 if in this situation." 143 00:07:20,460 --> 00:07:23,910 Another example of this is the POLST, which stands 144 00:07:23,910 --> 00:07:27,210 for Physician Orders for Life-Sustaining Treatment. 145 00:07:27,210 --> 00:07:30,060 That is a medical order that communicates 146 00:07:30,060 --> 00:07:34,320 the individual's preferences for medical treatments, 147 00:07:34,320 --> 00:07:37,930 particularly emergency situations, end-of-life care. 148 00:07:37,930 --> 00:07:40,620 The POLST, or you might see MOLST, 149 00:07:40,620 --> 00:07:43,980 is a document that is designed to be completed 150 00:07:43,980 --> 00:07:47,580 and signed by the healthcare professional, 151 00:07:47,580 --> 00:07:50,550 usually by a doctor or a nurse practitioner, 152 00:07:50,550 --> 00:07:52,140 who knows you well. 153 00:07:52,140 --> 00:07:53,850 You've consulted with them, 154 00:07:53,850 --> 00:07:57,930 and they're writing down medical orders 155 00:07:57,930 --> 00:08:00,810 based on your decision-making. 156 00:08:00,810 --> 00:08:02,340 The POLST form is typically used 157 00:08:02,340 --> 00:08:06,780 for individuals with serious illness, maybe frailty, 158 00:08:06,780 --> 00:08:09,420 who have specific medical treatment preferences 159 00:08:09,420 --> 00:08:13,350 they want to be honored in emergency situations. 160 00:08:13,350 --> 00:08:15,780 POLST form provides medical orders 161 00:08:15,780 --> 00:08:18,270 that guide healthcare providers 162 00:08:18,270 --> 00:08:22,200 on what treatments to provide or maybe withhold 163 00:08:22,200 --> 00:08:26,130 based on the individual's preferences. 164 00:08:26,130 --> 00:08:28,280 It's intended to be recognized and followed 165 00:08:29,490 --> 00:08:31,830 across the different healthcare settings, 166 00:08:31,830 --> 00:08:35,250 so whether you go to the hospital, the nursing home, 167 00:08:35,250 --> 00:08:38,640 or even if emergency medical services 168 00:08:38,640 --> 00:08:40,770 are providing services. 169 00:08:40,770 --> 00:08:44,070 So these are few examples of the legal documents 170 00:08:44,070 --> 00:08:46,980 that impact healthcare decision-making. 171 00:08:46,980 --> 00:08:48,540 Sometimes these overlap 172 00:08:48,540 --> 00:08:51,270 and can even contradict one another, 173 00:08:51,270 --> 00:08:53,793 which makes for very difficult situations. 174 00:08:54,930 --> 00:08:57,420 This week, I wanna dive a little bit deeper 175 00:08:57,420 --> 00:09:00,423 into the complex world of healthcare decision-making, 176 00:09:01,470 --> 00:09:03,240 and I just want to give you the caveat 177 00:09:03,240 --> 00:09:06,060 that all these situations are different, 178 00:09:06,060 --> 00:09:09,180 and in different states and in different places, 179 00:09:09,180 --> 00:09:11,880 you have different rules that oversee 180 00:09:11,880 --> 00:09:13,380 what's valid and what's not. 181 00:09:13,380 --> 00:09:18,380 So make sure not to lose the forest for the trees. 182 00:09:18,630 --> 00:09:20,430 These are just kind of general principles 183 00:09:20,430 --> 00:09:22,130 about how these things might work.